Every June, we shine a light on a condition that affects millions of women but is often overlooked or misunderstood: lipedema. Lipedema Awareness Month is about education, support, and advocating for early diagnosis and better care. At Front Room Underfashions, we believe that informed women are empowered women and we’re here to be part of the conversation.
What is Lipedema?
The word lipedema comes from the Greek roots "lip/o" meaning fat, and "-edema" meaning swelling. So quite literally, lipedema refers to a swelling caused by fat buildup.
You may also see it spelled as lipoedema, particularly in countries like the UK or Canada. Both terms describe the same condition, the spelling difference comes down to regional variations in medical terminology. Whether spelled with or without the "o-e," it refers to the same misunderstood and underdiagnosed disorder.
Lipedema/Lipoedema is a chronic fat disorder that causes a symmetrical buildup of painful fat, most commonly in the hips, thighs, buttocks, and sometimes the arms. It's often mistaken for simple weight gain or lymphedema, but unlike typical fat, lipedema tissue doesn’t respond to diet or exercise.
This condition primarily affects women and often develops or worsens during periods of hormonal change like puberty, pregnancy, or menopause. Common symptoms include:
- A heavy, aching feeling in the limbs
- Easy bruising
- Swelling that worsens throughout the day
- A distinct "cuffing" at the ankles or wrists where the fat ends
Many women go years without a correct diagnosis, often being told to simply "lose weight" which leads to frustration, shame, and a delay in getting proper care.
Want to learn more about the differences between lipedema and lymphedema? Read: Lipoedema vs. Lymphedema: Key Differences, Symptoms, and Treatments
Lipedema Isn’t Just About Being Overweight
One of the biggest misconceptions about lipedema is that it’s simply the result of being overweight or not exercising enough. This couldn’t be further from the truth. Lipedema fat is biologically and hormonally different from regular body fat and it doesn’t respond to diet or exercise the same way.
Many women with lipedema maintain healthy lifestyles, eat well, and stay active, yet still experience persistent fat buildup in specific areas. That’s because lipedema isn’t caused by lifestyle; it’s a chronic, progressive medical condition that requires proper diagnosis and specialized care.
Framing lipedema as a weight issue not only delays treatment, but also adds emotional harm through shame and blame. It’s time to change the conversation and separate fact from stigma.
What Happens When You Ignore Lipedema Symptoms
Without proper diagnosis and care, lipedema can progress over time, leading to greater physical and emotional challenges. The swelling and pain may worsen, mobility can become limited, and secondary conditions like lymphedema (often referred to as lipolymphedema) may develop.
Ignoring symptoms can also impact mental health. Many women report feelings of depression, anxiety, and isolation due to being misunderstood or misdiagnosed.
Early intervention is key. The sooner lipedema is recognized, the more options are available to manage it effectively through compression therapy, gentle movement, supportive garments, and emotional support.
Why Lipedema Awareness Matters
Raising awareness isn't just about facts and figures. It's about validating the experiences of those living with this condition. Because lipedema is underdiagnosed, many women blame themselves for their symptoms or feel isolated in their struggle.
Awareness brings:
- Earlier diagnosis – which can help slow progression and improve outcomes
- Increased compassion – so women know they're not alone or at fault
- Better access to resources – including medical care, garments, and support communities
No one should suffer in silence simply because the condition they live with isn't widely understood.
How You Can Support Lipedema Awareness
Whether you’re living with lipedema or love someone who is, there are ways to support the cause:
- Educate yourself – Read trusted resources and learn the signs.
- Start conversations – The more we talk about it, the less invisible it becomes.
- Use your voice online – Share stories and facts using hashtags like #LipedemaAwarenessMonth or #LipedemaSupport.
- Encourage medical advocacy – If you think you or someone you love may have lipedema, speak up. Ask for referrals. Push for answers.
Our Commitment to the Lipedema Community
At Front Room Underfashions, we’re more than just a store; we’re a space where women feel seen, supported, and empowered. We recognize that lipedema is a medical condition that deserves compassionate care and real solutions.
Our professional team is trained to work with women of all sizes and needs, including those managing lipedema. We take time, offer judgment-free fittings, and recommend solutions based on what’s comfortable, supportive, and right for you.
If you need help, we’re here to listen. If you have questions, we’ll walk with you as you find answers.
You Are Not Alone
Lipedema Awareness Month is a reminder that knowledge is power but connection is everything. If you’re struggling with symptoms, looking for answers, or simply want to feel understood, we invite you to stop by or reach out.
Let’s make June a month of compassion, awareness, and strength for all those affected by lipedema.
Learn more or schedule a fitting with our team today: Come Visit Front Room Underfashions